BEYOND FAMILY: WAYS TO HELP PEOPLE WITH DISABILITIES LIVE INDEPENDENT LIVES - HANDBOOK 4
The paper examines services for people with disabilities who are not self-sufficient under a cross-discipline approach, focusing on how to best help them when their family is gone.
It starts with a review of existing public services in 40 Lombard municipalities, showing that there are broad differences in terms of support as well as access to services for these people, as a result of which families largely bear the burden of care and related costs.
It continues with a review of the wealth of initiatives and programs that are put in place by nonprofit players to help people with disabilities and their families, that at times are markedly different and leave a good chunk of the needs of these people unattended.
Finally, the paper investigates the possibilities of integrating these individual initiatives with the actions taken by specialist nonprofit organizations. In particular the authors argue the benefits of establishing special needs trusts as the vehicles that purchase a life estate interest for the disabled, manage their assets and negotiate insurance at fair conditions, including annuities that cover their needs when their parents are gone.
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